|Wu Runhui [Workercn.cn]|
Wu Runhui, the chief physician of the Blood Oncology Center of Beijing Children's Hospital, recently shared her experiences of helping children with hemophilia over the past several years.
Hemophilia adversely affects the ability of the body to form blood clots, Wu explains.
If children with the condition suffers any wound, even a minor one, they would bleed continuously.
Because of hereditary factors, men are more prone to suffer from hemophilia, whilst women are more likely to be carriers.
Hemophiliacs face life-threatening risks from any simple trauma.
"Internal bleeding is actually more dangerous than external ones. In the case of intracranial hemorrhage, the risk of death and disability is higher," Wu says.
"However, if the bleeding occurs frequently on the bone, even if well treated, patients will be physically-impaired."
Hemophilia can be classified on different levels: mild, moderate, and severe, according to the severity of symptoms and active level of coagulation factors.
Severe hemophilia occurs when the concentration of the clotting factor is less than 1 percent. Severe patients often suffer from muscle or joint bleeding, usually spontaneously and without any cause, once or twice a week.
Ma Haiming, mother of 11-year-old Feng Yu, who has been treated for six years, said: "He is a severe hemophilia patient, with a blood coagulation factor as low as 0.97 percent."
In 2006, Wu and her team began using a low-dose prophylactic treatment method, which was a bold attempt at that time.
There are two treatment methods for hemophilia — on-demand treatment and preventive treatment. The preventive method means administering a regular injection of coagulation factor before a hemorrhage occurs.
"The preventive treatment has had a better effect for my child," Ma said.
With the preventive injection treatment three times a week, Feng Yu can now live normally.
"According to international standards, the drug delivery program may cost 1 million yuan a year, and the treatment costs will get higher as they age," Wu said.
"These families are really impoverished due to illness, so, it is best if a treatment method can help them save money whilst curing their condition," Wu added.
At present, there are over 10,000 registered hemophiliac patients in the country.
For over a decade, in order to help hemophiliac children and families, Wu's out-patient service has never limited the number of patients.
Hemophilia requires lifelong treatment. Although the future is full of unknown factors, Wu said she will never give up her efforts.
"I will work with these patients and parents to create a more dignified future for them," Wu concluded.
|Wu Runhui [Workercn.cn]|
(Source: Workercn.cn/Translated and edited by Women of China)